I seem to be battling fatigue, the best way to describe it is like having a flat battery, yes it does make me sleepy, and overall just sluggish, sapped and low on energy and even motivation.
The odd thing is I wake after a good sleep full of energy and then 2-3 hours after taking my morning dose of Nilotinib I feel like a zombie. In the beginning this was more intermittent with no reason or rhyme but I think it’s becoming more constant. I know TKIs can cause fatigue but I wonder if anyone could describe how their fatigue feels as it’s kind of difficult to describe other than the above. And what they do to circumvent it. I know brisk exercise can help and I used to be a big runner but ironically have had problems with my shins and balls of feet since being on TKI which does interfere with that.
At all blood tests the biochemistry has been normal, I am not quite MMR after 2.4 years but very close (not that would have anything to do with fatigue). I test again in October and results in November.
My doc says supplements don’t do anything and told me at diagnosis to stop taking them immediately... why I have no idea other than he said you get everything from food. Maybe I should start thinking about it. And or do some low impact exercise daily... anything to rid this fatigue.