I've unfortunately had a setback in my CML treatment and was hoping that someone on the forum could give me advice, please.
Yesterday, a complete blood count showed that I have pancytopenia:
Red Blood Cells 2.37
White Blood Cells 3.18
The doctor called me in and said that this was very serious - I've never had any low blood counts before - and immediately booked me in for a bone marrow biopsy. She also said that I must prepare for some difficult months ahead. I have no idea why my counts are so low, but it completely freaked me out this morning when I saw my admission sheet - she had written "CML transformation" as my diagnosis, which makes me think that she believes that the disease has progressed. I find it so hard to believe that one can go from MR4.5 to blast crisis in less than a month!
A search revealed that blast crisis often presents with pancytopenia. This is counter-intuitive to me because I thought blast crisis would show up as a high WBC, not a low one. The doctor also prescribed me anti-depressants and organised a session with the psychologist as she said I'll need them for the road ahead... when I spoke to the psychologist today and said that I didn't think it possible for such a quick progression in disease, he answered "Well, cancer does that. That's how it operates."
If anyone has any experience with this, or just some advice or kind words, I'd be so grateful. I get the results on 8 August so it's one very long wait... and it's devastating to me that I may not have beaten CML after all.
Thank you and kind regards